The article discusses the challenges faced by family caregivers of individuals with dementia in Switzerland, emphasizing the emotional and physical toll of caregiving. Natalie Hamela, a dementia specialist, highlights the difficulties of daily routines, emotional strain, and the importance of support networks. It also mentions the need for caregivers to prioritize their own well-being and the role of community support, especially on Family Caregiver Day, to foster awareness and offer tangible help.
Caring for a loved one, especially one diagnosed with dementia, presents numerous challenges for family caregivers. Despite the passage of time, normalcy can feel elusive as daily routines become increasingly strained.
In Switzerland alone, approximately 156,000 individuals are afflicted with dementia. Natalie Hamela, a dementia specialist from Alzheimer Bern, provides guidance to families who find themselves overwhelmed in these circumstances.
Interviewer: Expressing gratitude is appreciated, but it doesn’t alleviate the struggles faced by family caregivers. What significance does today hold?
Natalie Hamela: It’s a small step in a larger journey. While it may seem minimal, raising awareness about the challenges faced by caregivers is essential.
What aspects of daily life are particularly challenging for family caregivers? Can you share a typical morning scenario?
Typically, a caregiver may have an early doctor’s appointment, say at 8:30 am, but may struggle to reach it on time due to the slow pace or refusal of the person with dementia to get ready. The caregiver’s attempts to provide guidance may be perceived as commands, leading to resistance. Additionally, tasks like operating a coffee machine can become frustratingly complex, adding to the stress as caregivers must navigate these emotional hurdles.
It seems that nights can be particularly taxing for caregivers. How do they cope with the demands of round-the-clock care?
Indeed, those who provide constant care experience immense pressure. It’s important to acknowledge the emotional toll as well—their partner is no longer the person they once knew, leading to a grieving process. Caregivers find themselves in a dual role, managing their own needs while attempting to respect the autonomy of their loved one. Such tensions can often lead to conflict and further complications in their relationship.
There are services available that support family caregivers, such as day care for individuals with dementia. How do these programs benefit caregivers?
These services offer essential breaks for caregivers, allowing them to attend to their own needs, which are often neglected. By ensuring caregivers have time for themselves, the risk of escalating stress and burnout can be significantly reduced. Taking a day off can prove invaluable for anyone in a caregiving role.
Today marks Family Caregiver Day. What practical ways can friends and family support caregivers throughout the year?
Support from one’s personal network is crucial. Before seeking outside help, it’s beneficial to rely on the people around you. Friends and neighbors can make a significant difference by offering concrete assistance—rather than a vague promise to help. For instance, simply saying, “I see you’re managing a lot; let me help you with this,” can alleviate some burden when offered proactively.
This conversation was conducted by Stefan Siegenthaler.